This blog chronicles the adventures of our daughter Shoshanna, who was born at 25 weeks, 3 days gestation, weighing 1 pound, 13 oz. She spent 89 days in the neonatal intensive care unit and continuing care nursery, and came home two weeks before her due date. In the hospital, she was diagnosed with grade I/II IVH bilaterally, Stage I/II ROP bilaterally, chronic lung disease/BPD, and reflux. She came home from the hospital on supplemental oxygen and a pulse ox/heart rate monitor. Her IVH resolved itself within the first couple of weeks; the ROP was resolved by shortly after her due date, the BPD was considered “resolved” by the time she was six months old (though she did get a second season of Synagis and nobody batted an eyelash), and she was discharged from her gastroenterologist’s care at 13 months of age.
She’s now three and a half and a very crazy, very typical preschooler. She loves to play make believe, draw, read, and play outside (preferably in sand).
In honor of her, we support the March of Dimes in their annual March for Babies events - the 2008 walk will take place on April 27th. If you’d like to donate, you can do so here; if you’re in the Buffalo area (or want to come visit us), please sign up to walk as part of our team!
We would like to give tons of credit to the staff at the neonatal intensive care unit at Baystate Medical Center in Springfield, MA for taking such great care of Shohsanna for the 89 days that she was hospiatlized. We were so fortunate to live half an hour away from such a great hospital, and it became our home away from home for the three months that Shoshanna was “on the inside.”
